Today is 15 September 2004.
Paper jam.
Metal bent, printer broken.
One-year hardware warranty.
Look up receipt.
It’s dated 14 September 2003.
Typical.
Today is 15 September 2004.
Paper jam.
Metal bent, printer broken.
One-year hardware warranty.
Look up receipt.
It’s dated 14 September 2003.
Typical.
I had my biopsy and ear tube insertion on Wednesday, September 8. The day before, I was told to arrive at outpatient surgery a little before my 7 a.m. appointment, so I took a cab and signed in at 6:40 a.m. And waited.
And waited.
8 a.m. Waited.
9 a.m. Waited some more.
9:45 a.m. I asked if there’s any estimate of remaining wait time. It turned out that my ENT had had an emergency or two, but I was fourth on the list, and three had been called (if I understood this right).
At 11:10 a.m. or so (I was so overjoyed and relieved that I didn’t look at the time), I was called. I had moved closer to the desk because I was having a difficult time hearing. It didn’t help that a few other people had “Sch” names. I probably jumped up a half-dozen times, especially as time continued to pass. Because I couldn’t hear and didn’t want to miss my name, I found it difficult to concentrate on Thomas Hardy’s The Return of the Native, and I ran out of spam e-mail to read on my cell phone.
The nurse introduced herself and took me to a small room to undress. Everyone introduced him- or herself. “Hello, I’m Trina, and I’m going to take your temperature and blood pressure and give you a pregnancy test.” “Hello, I’m Dr. So-and-So, and I’m your anesthesiologist.” This was all said in the same tone you would hear a server say, “Hello, I’m Bradley. Tonight’s special is a delicate orange roughy, baked to perfection by Chef Jacques.”
The first thing I notice is a sign printed on green paper in a plastic sleeve on the wall that says something to this effect:
SURGEONS: You must mark the site of surgery on your patient. We “can not” accept patients in the operating room who have not been marked.
There was a binder on the table, so I looked at it. The top sheet had “mild systemic disease” checked. I thought to myself, “Do I have a mild systemic disease that everyone forgot to tell me about?” At 43, I saw my life falling apart. Not only do I have sensorineural hearing loss usually associated with aging, but now apparently I have a mild systemic disease. I became a bit sadder than I already was.
Then I noticed that the health coverage is “Medicare.”
Then I saw that the name is . . . a man’s.
I checked the binder to see if it’s a collection of other patients’ records, but my name was on the front, and that’s the only section in there that wasn’t mine. I wondered if I should tell anyone, and I worried that I’m going to embarrass someone if I do, or get them into trouble. I wasn’t thinking straight, because I didn’t really consider the consequences of not speaking up.
I don’t know how many different RNs I saw — at least a half dozen. The RN who’d called me brought me a larger gown (her idea) and also administered the “lactated” IV solution. First, she tried a vein in my right hand, but was muttering something about it moving (who knew that my cardiovascular system was so elusive?), although I may not have heard correctly. At that point, she jabbed a nerve. Imagine hitting your elbow squarely on a corner and that painful, radiating, vibrating pain. Now imagine someone stabbing a nerve directly . . .
I made a face but did not cry out (although tempted), and she said, “Did I hit a nerve?” “Yes,” I said hoarsely.
She moved over an inch and found a vein. Our VP of resident care, a RN and MSN, looked at it today and said she did a very good job; there’s very little swelling or bruising. The only real bruise is in my mind, the memory of the sensation of a nerve being stabbed.
A different nurse took my blood pressure (120/80) and temperature, and gave me a pregnancy test (required, apparently). The result was predictable.
At some point, a young man came in and introduced himself as the anesthesiologist. He told me that the ENT had warned him that I might have difficult air passageways (I thought, oh, sure, just because I couldn’t breathe through my nose for four months last year, give me a reputation). He asked me how I sleep (on my side, never on my back), but his real concern was whether I can breathe while lying on my back. He kept looking at my chin after having had me open wide and say “Ahhh,” saying it was on the short side, but he could work with it. “It’s not ideal,” he said, “but it could be worse.” Yes, I know; I’ve said that for years, but I mean aesthetically. He also asked me if I have any loose or damaged teeth. “No, just braces.” He said, “But no loose or damaged teeth?” I didn’t know how to explain to him that braces make all my teeth feel like they’re on the verge of falling out or breaking.
I did tell him I’d been under general anesthesia in the 1970s for an emergency appendectomy. He said, “That was a long time ago.” It occurred to me that he might not have been born yet . . .
He described in glorious detail the approaches he could take to putting me under, including a tube down the throat, and adding that if none of them worked or if I came around, anesthetizing the area would be a last resort. He had me sign a consent, which included wording about common side effects such as sore throat and nausea and then went on to mention liver damage, heart failure, and even death, I think. I pointed this out to him, and he assured me that these were highly unlikely to occur. It also mentioned the possibility of damage to the teeth. At that, I said, “Look, I really don’t care if you kill me, but for pity’s sake, do NOT damage the teeth that I paid $5,000 [slight exaggeration] for.” He looked a little taken aback and said he’d do his best. I was reminded of Jean-Luc Picard: “Not good enough, damn it; not good enough!”
Every time I was left alone for a few minutes between these astral visits, I would feel tears running down the sides of my cheeks and into my ears. “I’m not crying,” I practiced saying. “I’m tired, and my eyes are watering.”
At some point before this, I think, the ENT had come in and dutifully marked my right ear as the area we’d agreed on. (Like corporate America, even medicine has become a team effort, with physician and patient having to agree on the obvious.) As he was looking through the binder, he found the chart of the Medicare patient and said, “This isn’t you.” I played stupid and deaf (the latter part particularly well). He said, “This is someone else’s information. They’ve been looking for it. No wonder they couldn’t find it.” Then he took off with it to pass it on to its rightful owner. At that point, I realised I should have spoken up.
He then filled out some paperwork and at one point said, “Ooops!”
I had to stop myself from saying, “‘Ooops!’ is not something you want to hear from a surgeon.”
Both he and the anesthesiologist had me sign consent forms while my right hand was immobile (and sore) from the IV. I asked if I had to sign my own name (I was seriously thinking “Oprah” might work). Of course, these signatures were so shaky and irregular that no one will ever be able to read them. They could say Oprah for all anyone would know.
Throughout the entire day, every person asked me how I was getting home, and I told them either public transportation or a cab. They all found this disturbing. “But you were told to bring someone with you who could drive you home. You can’t take a bus!” I told them I didn’t have anyone handy, and besides, I would be just fine on my own. They seemed skeptical. I promised to take a cab rather than a bus.
After waiting a bit more, an orderly came to wheel me off. Everyone should be wheeled through the labrynthine, brightly lit, fluorescent hallways of a hospital in a prone position at what seems like fairly good speed. It’s a more surreal, scifi experience than any amusement ride could offer.
In the operating room, I saw Dr. ENT again. He patted my arm twice reassuringly, which made me think of my appendectomy in 1975 or 6, when my dad had smiled and squeezed my hand just as I was losing consciousness — one of my oddly happy memories, because it was one of my dad’s rare moments of open warmth.
The anesthesiologist put a mask on me and told me to breathe regularly. I did and noticed no effects whatsoever.
Then I was suddenly awake in a different room, with no more full feeling in my ear but with a painful nose and a dry mouth. I heard a beeping behind me. A plastic mask was digging into the skin under my right eye. Suddenly, a blood pressure cuff startled me by inflating around my left arm. I was in recovery, on oxygen, attached to a heart monitor and to a blood pressure cuff on a timer. Dastardly clever! How different from my appendectomy, when all I had to keep me company was the IV solution, a painful thirst, and unbearable nausea.
This time it was okay, except the small of my back hurt, and I began feeling an urgent need to urinate. I figured the cuff was on a 10-minute timer (just a guess), so after a few inflations, I asked the nurse who kept wandering by how much longer. “Just a few minutes.” I am sure that is what all jailers tell hapless prisoners. I kept bending my knees and trying to sit up to take the pressure off my lower back, but it was difficult with everything attached to my arms and chest. I also noticed how much the inside of my nose hurt, although I thought it might be partly from dehydration.
I noticed I could hear better now that the right side was no longer filled with fluid, but the improvement did not seem as great as I would have liked.
I felt something tickling my cheek. I thought it was a hair, but couldn’t figure out how to brush it aside. The nurse checked on me and said, “Oh, let me tape that.” “I almost brushed it aside,” I said. “I’m glad you didn’t because you need to leave it in for a while.” She taped a monstrous length of black thread hanging out of my nose to my cheek. I thought she said it was a catheter, but I realise now I must have misheard.
The nurse came back over, not to release me, but to throw warm blankets over my chest, the top part of which was uncovered with all its attachments. “We are Borg. You will be assimilated.” She said after a bit, “I’m just waiting for transportation.”
Transportation arrived, and I got another free-wheeling ride through innumerable hospital-coloured hallways. Finally, I arrived at a different room, where a nurse (who introduced herself, of course) and the cart with my clothes awaited me. She asked me how I felt, which was fine. “I am very thirsty, though.” “Would you like some juice?” “Yes, that would be great.” She got me apple juice. Halfway through it, I said, “Oh, and I really, really have to pee.” I then proceeded to do so in a way that would make a racehorse proud — must have been the IV, because I hadn’t eaten or drunk anything since 10 o’clock the night before, and it was now 3 p.m. The nurse was amazed at how I leapt out of the chair, which reminded me of the same reaction the nurses had had when I sat up immediately after my appendectomy. I recover quickly.
I happened to look in the mirror, curious about the black thread taped to my face, and noticed that there was a cotton ball in my ear. “Oh, they were supposed to take that out,” she said. I did, and my hearing improved even more.
She removed all the IV tape, complaining that I was so dehydrated that it was stubbornly sticking to me. I pointed out that I’d dutifully had had nothing to drink since the night before, other than the apple juice she’d just given me, and she said, “Oh, yeah.”
She gave me the ENT’s instructions, which were for no medication and for no diet or activity restrictions. She did have a bottle of eye drops but figured out they must have been for someone else. “You don’t use eye drops, do you?” “No.”
At that point, I asked hopefully, “Can I swim then?” “Ummm, no, no swimming. Ask him about that at your appointment, which you’ll need to schedule.” “Oh, it’s already taken care of.” She told me that I was to remove the thing in my nose the next morning.
I found my way to the main entrance (not easy, given all the twisting and turning halls and corner), walked over to King Drive, and took a cab home uneventfully, except for people looking at me because I had a foot and a half of black string coming out of my nose and taped to my face. An elderly woman waiting in front of The Flamingo gave me a knowing look.
So naturally I removed the tape and cut off the string so it was shorter than my nose. I figured I could use tweezers to get it when the time came.
I made organic macaroni and cheese and coffee and brought them with me for a walk and meal by the lake. I felt okay, except my nose was runny and irritated, and I was afraid to blow out the mystery object, which I mistakenly thought was small. I sounded and felt like I had a cold.
By 3 a.m., the irritation had woken me up, and I decided that it was technically morning so it was okay to remove the thing in my nose, whatever it was. I tugged. It ached. I tugged harder. It ached more. It began to occur to me that it was perhaps larger than I’d thought. I resolved to remove it, never mind the discomfort. Out it came with dull aching rip of pain. It turns out it was a piece of foam (nasal packing) about 3 inches long, a 1/2 inch wide, and maybe an 1/8 inch deep.
I went back to sleep. That morning, I got rid of more irritants up my nose. It now feels so much better, as does my ear without fluid and with equal air pressure on either side of the drum.
Now about the biopsy . . . I’ll find out on September 16.
Continued from the previous entry:
As with everything, it appears that fate has made the choice for me.
For the past few months, beginning a couple of months after I got braces, I began to feel pressure changes in my ears plus the sensation of them closing and opening. It’s comparable to being in an airplane at 30,000 feet, in a high-rise elevator, or at a high elevation. Most of the time — not all — if I opened my mouth wide, one or both ears would pop open. It very uncomfortable and disconcerting. I asked my dentist about it; she thought it could be attributable to tooth movement. When I asked the orthodontist, however, he seemed sure there was no relationship.
Until this time, I had no problems hearing whatsoever. I could hear other people’s conversations in restaurants and even on buses, over all the engine and traffic noise. I always kept televisions and stereos at only a few clicks above mute.
About 6–8 weeks ago, my right ear began bothering me even more. It felt full and blocked. Yawning didn’t help any more. I had an appointment with my physician on July 21, by which time it was noticeably worsening. He eliminated ear wax as a possibility and sent me for a hearing test, which I scheduled for August 4.
The audiologist told me I have a “pretty good middle ear infection going on.” I don’t know what would have caused this; I have had no colds, upper respiratory infections, or allergies — the usual culprits. I have not had an ear infection since I was 4–6 years old, when they were very painful. I remember screaming then.
She also told me that I have moderate hearing loss in my left ear, enough to warrant a hearing aid. She couldn’t tell about the right since the fluid is preventing me from hearing at all on that side. She said that hearing loss at my age is unusual, that is, it’s not age related.
The next day, I saw my ENT, who told me that I don’t have an infection, just serous fluid, and that it appears to be getting better on its own. If it doesn’t drain within four weeks, he’ll consider putting a tube in, as is done with children. Meanwhile, four days after this, my right ear felt completely congested. Every time I move my head, I can hear the fluid sloshing, so to speak. I can’t hear much else.
He wanted to know if the audiologist and I had talked about a hearing aid for the left ear. I said, “Yes, briefly.” When I asked, he said it’s a progressive loss, although there’s no way to know the rate. The cause is unknown. The audiologist and ENT both mentioned genetics, but I know of only one person in my family who was hard of hearing. That was my 67-year-old aunt, that is, someone for whom age was a factor.
Part of me says that the audiologist and the ENT know what they’re talking about.
Part of me says that this seems awfully sudden.
Part of me wonders if my right ear, the one I use for phone calls, has been doing all the hearing and that’s why neither I nor my friends and coworkers never noticed a hearing problem. If so, I wonder for how long I have had this loss.
Part of me wonders why there is so much popping and cracking in both ears when I move my jaw and if there is some hope that the tooth movement has caused something to misalign and affect my hearing. Even though three professionals pooh-pooh this idea, periodically — like last night — I feel a pop and then I momentarily hear better in the left.
And then the part of me that tried to watch Star Trek: The Next Generation reruns and to listen to Chuck Schaden’s “Those Were the Days” and Garrison Keillor’s “A Prairie Home Companion” and couldn’t distinguish much in the way of words — words all sound like gibberish, with or without headphones — lay down and cried and cried and cried, out of frustration, puzzlement, hurt, fear, loss, and who knows what other emotions.
And that’s where I am today — constantly saying, “Pardon?” to coworkers, watching lips move with no sounds issuing and tiring myself out with the strain of listening closely.
The tracks of my tears.
I wonder if, at some point in life, everyone wonders whether he or she would rather face blindness or deafness. It’s a natural question; anyone who expects to live to an advanced age can expect to face one or the other eventuality, or both. Eyesight declines and changes with age. Glaucoma, cataracts, and macular degeneration cause various degrees of visual impairment. Age-related diseases like diabetes can choke the capillaries that feed blood to the eyes and cause blindness. Hearing also diminishes naturally with age, although in most cases it is not entirely lost. Most people will die from an age-related cause or disease before becoming profoundly deaf.
Of course, we treat the question as an either/or one. To become completely blind and profoundly deaf is rare, even in advanced age.
As a child, I lived across the street from a retired teacher who was over 80 years old and was blind from cataracts. She could see light and shadows, but nothing more. She may have been slightly hard of hearing, as one might expect to be at more than 80 years old, but she recognised the sound and cadence of my footsteps, and she told me the ways in which my speech sounds Pennsylvanian (from my parents) and in the ways in which it sounds western New York (from where we lived). Interestingly, her son, who lived with her, was both mentally impaired and hard of hearing from birth. They took care of each other.
When I was younger, I asked myself which I would rather lose — sight or hearing — given that loss of one or the other seems inevitable and given my experience with my neighbour. My eyesight was already poor. In second or third grade, when I was no longer among the first to answer flashcard questions, the school gave me a vision test and then had my parents take me to the optometrist. It turned out that, like my brother, I was very nearsighted and astigmatic. I remember clearly that, when I came out of the optometrist’s a week or so later at twilight with my first pair of glasses, I realised that trees have individual leaves — something I’d forgotten as the world had slowly and imperceptibly become blurry to me, like an Impressionist painting. I could see the trunks and the colours, but only with glasses could I see the details. It was a visual epiphany.
Meanwhile, my hearing has never seemed very good to me, but it passed muster when tested at school. I’ve never liked anything loud — loud concerts, loud bars, loud noises, loud parties, or the voices of loud people. I could not stay at loud parties or bars long, and I tend to turn televisions and radios down to as low as possible sot that I can hear them without being overwhelmed. I try to avoid any assault on my hearing. Elaine Aron, Ph.D., would probably attribute these sensitivities to more than simply being an introvert; she might think I am an “HSP,” a highly sensitive person easily overstimulated and overwhelmed by too much sensory input.
About 20 years ago, I noticed I have a constant ringing or whine in my right ear. For a while, I thought nothing of it, but finally asked my father’s doctor in New York about it. He ruled out high blood pressure and said it’s nearly impossible to narrow down the cause of tinnitus.
Being blind or deaf seemed an impossible “choice.” Blindness would take away the pleasures of observing sunlight through the leaves or the moon over the lake, appreciating Manet and Monet, and reading words on paper. I’m a visual learner, so audio books, are not a viable alternative. At the same time, it would be difficult for someone as stubbornly independent as I am to rely on others to help me navigate the streets. I also could not imagine day-to-day living blindly, not able to see anything and relying on touch and order to know what things are and where they are. I am so visual that I do not know how well I could adapt to the disorientation that I would feel. I do not adapt well to change (perhaps some of that being related to HSP traits). One has few alternatives, however. To live and adapt or to live and fight oneself and drain one’s own energy futilely.
Deafness is no more appealing than blindness. I’ve always been fond of voices and liked actors such as Orson Welles and Richard Kiley as much for their voices as for their other abilities. I prefer a good, rich, or interesting voice to good or interesting looks.
Then there is music; I cannot imagine life without Celtic, Renaissance, or medieval music, without Stravinsky, without Dvorak, without Mozart. I cannot envision it without the evocative pop songs of my childhood or all the joys and sorrows music.
As with blindness, there’s the practical side of life. Most human communication is through speech. Even with e-mail, most people I know in the work place prefer face-to-face meetings or phone calls. The world presumes that you can hear. Cyclists yell, “On your left!” so you’ll move aside for them. Everyone you meet during a typical day, whether it’s cashiers, lost tourists, or strangers on the sidewalk, assumes that you can hear them and that you can and want to speak with them.
In this, blindness and hearing impairment are different. Blindness is usually obvious, with markers such as a guide dog, a white cane, special glasses, or a friend who leads the way. Hearing impairment is usually not so evident. It’s easy to be perceived as rude when others don’t know why you don’t respond to them. I’ve been as guilty as anyone else, too, of impatience when I have to repeat myself several times. In a couple of cases, such impatience has been warranted because I knew the person simply wasn’t listening. In others, it was my own insensitivity, perhaps mixed with ignorance and fear.
How often in history have physical impairments been consciously or unconsciously associated with mental impairment? How often have people thought children and even adults were “slow” because they suffered a sensory deficit?
As his hearing loss deepened, Ludwig von Beethoven became aware of how the deaf could be perceived by others. He wrote a letter explaining himself to his brothers; a translation is at Hearing Center Online. This frustration not only with his hearing loss, but also with its practical, social, and emotional ramifications, is palpable and heartrending.
The explanation for this entry follows in the next.
There will be nothing deep today because I’m in pain. The kind of pain I can’t describe to someone who’s never experienced it. Shoulder pain. Rotate your arm with your elbow straight out and your hand pointing down. Easy enough? For me, that movement feels like being stabbed in the shoulder, then having the knife twisted. I can feel the movement grinding, then a twinge sharp enough to make me feel faint. The pain makes me obsessive about it.
Easy enough to avoid it, you say — after all, who walks around with their arm making a square with the ground, anyway? Except that that rotating motion is something you do all the time in the normal course of living. You’re not conscious of it until it hurts. And then you’re aware of every slight movement. Even breathing can hurt.
I tried to keep my shoulder moving because that sometimes seems to help, but this time it got worse overnight. Now it hurts constantly, and my arm and hand are achy, yet numb. To move my hand, I have to pick it up with the other one; it is that weak.
I don’t know what’s wrong with it; I forget to mention it to my doctor when I see him because it’s usually not bothering me then. I must remember in May . . . Once it was so bad, though, I went to him especially for it, and he sent me for X-rays, that showed the shoulder is fine, but I have arthritis in my neck — my neck, which doesn’t hurt and remains strong and flexible.
Bursitis? Rotator cuff? Pinched nerve? I don’t know; I do know it used to be mostly my left shoulder that felt it, but last weekend, my right shoulder was aching, too.
Today, this isn’t an ache, though, in my left shoulder; it’s stabbing pain, weakness, and numbness all rolled into a debilitating package. I know I did something to cause it; for one thing, I tend to rest my head against my hand, like the Rodin sculpture, The Thinker, and that jams the shoulder and seems to cause it or exacerbate it.
They say shoulder pain is among the worst types. I believe it; an acquaintance once dislocated his shoulder sliding into second base and promptly slipped into unconsciousness. I am not at that point yet, however. Sleep is impossible because the pain keeps waking me up. Unconsciousness would be a blessing.
Appreciate your joints when you are pain free. I pulled a hip muscle a few years ago; I don’t even know how, except that it seems to have happened in my sleep. It took at least 10 minutes to walk a block to catch a cab to the hospital. Muscle relaxants and a strong prescription for ibuprofen were an immediate help. But during the two days I spent in agony before seeking help (hoping it would heal on its own), I realised how much we rely on things like hips and knees and shoulders and how much work they do — and what it’s like when they can’t work.
The last time my shoulder hurt this badly, the pain lasted 10 days, and the whole arm was so numb I couldn’t move it. After three days, when nothing worked, I told my brother that if this were an incurable/untreatable condition, I would kill myself. I couldn’t sleep and I couldn’t function. I had to do everything one handed, but every movement still caused pain. It suddenly started to fade, through no intervention, and then I began to wonder if that wasn’t an infection of some kind. The timing seemed right, as did the onset and disappearance . . .
If this is what my dotage has in store for me as a “normal” part of aging, I am beginning to wonder if a 45-year lifespan isn’t such a bad idea . . .
Postscript added 23 May 2003: This problem turned out to be what the orthopedic surgeon described as a “relatively common” condition known as impingement syndrome that can lead to tearing of the rotator cuff. He gave me a cortisone shot in the left shoulder (which was not as bad as I anticipated), and I had physical therapy for a while. The pain has come back in both shoulders once in a while, but not as badly, and aspirin helps. Now if I could just be disciplined enough to do the physical therapy regularly to strengthen the rotator cuff . . .